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This page is about Luke my youngest son who has Cutaneous Mastocytosis
Luke was born on September the 5th 2001, he had not been a planned baby but was
more than welcome the second i found out i was expecting at the age of 41.
He was not due until the 17th of September but due to my high blood pressure which i had kept since
the birth of Adam, they decided to induce me.
He spent his first night in the intensive care due to him turning black not long after his first bottle
of 10ml.
Apparantly he sucked some of the milk down into his lungs and thats what caused him to turn black. I
was really scared when he suddenly turned, first his feet and hands and then it just started to cover his whole body, he got
whisked off by a doctor and they sucked the fluid from his lungs and then took him to the intensive care one floor up. The
doctors assured me he was ok but just to be on the safe side they would keep him there overnight. I went to see him a few
hours later and he looked huge, all the other babys there were premature and tiny, he looked like the hulk baby....lol
He was allowed home the next day and was so alert.
From the first day Luke itched like crazy, as soon as he got the chance to scratch
he would scratch till he was red raw. I took him to the baby clinic where they advised me to change washing powders, it was
at this time i found out that Adam had Systemic Mastocytosis. I told the baby clinic about Adam and suggested Luke might have
the same, i was looked at like i was yet another over protective mother. Each visit to the baby clinic i told them he still
itched and each time i was given advice to change soap powders, then to not use soap on him, just water, by chance him being
in intensive care for one night i had to take him back for a check up at 3 months, i told the doctor about his itching and
she prescribed some homopathic drops to give him, they seemed to help a bit, but they never stopped it. In July 2002 Adam
was given the Ketotifen and Nalcrom, Luke always wanted to lick the spoon after Adam had taken his medicine, he felt left
out otherwise....lol
I noticed he did not itch as much, so the next visit to the local pediatric doctor i mentioned this
and so she prescribed the ketotifen for Luke. When Luke also got stomach problems with the same terrible nappie rash as Adam
had always had, she also prescribed Luke with Nalcrom. I did suggest he might also have Mastocytosis in some form but he had
no spots to go with it, so she said to leave it, not go looking for things, she is an excellent doctor so i went with that.
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| Luke 2 days old with his Great Grandma |
The more i learnt about Adam the more i watched Luke for symptoms. One day after reading about Dermotographism i tried
the test on Adam and there was nothing to see, for a bit of fun i tried it on Luke and had the shock of my life when his name
appeared on his back, it was like a bomb dropping, i done it again and there on his back under the other Luke i had written
came the second Luke. It felt like i had just been told someone close to me had died, i tried to calm myself down by telling
myself he had no other symptoms like Adam, no enlarged liver and spleen, no low blood platelet count, but i was just numb.
I went online and found the pictures again and it was dermotographism. The next day i done the same thing again to his
back and nothing appeared, since then i have learnt that he mostly gets it when he is upset or has been running around playing
and getting excited. Here are some pictures of his dermotographism.
In September 2003 we moved back to England and I took both Adam and Luke to see the GP. He refered them both onto the
local Ped Doctor who was more interested in Adam. Luke by this time had got a small masto looking spot on his trunk which
i pointed out to the doctor and he said it was what they called Cutaneous Mastocytosis. He still takes the medicine and now
also has an epi pen. He has colds now and again, but apart from that he seems pretty much ok.
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